Championing Rights and Research
Our Mission Against Batten Disease
Join us in our relentless pursuit to uphold the rights of those affected by Batten disease and drive research towards a cure.
Advocacy
Research
Support
Awareness
Our Mission and Vision
Our Goals for a Cure
Funding Research
We allocate resources to groundbreaking research projects aimed at understanding and curing Batten disease.
Community Engagement
We organize events and initiatives to foster a supportive community for affected families and researchers.
Upcoming Fundraising Events
Batten Disease Research Golf Tournament
Join us on June 15th for a day of golf and fundraising at the prestigious Green Valley Golf Club.
Entry Fee: $150
Annual Charity Gala
Save the date for our elegant evening event on September 10th, featuring a silent auction and dinner.
Tickets: $200
Family Fun Run
Participate in our 5K run on October 22nd to support Batten disease research.
Registration: $30
Virtual Awareness Workshop
Attend our online workshop on November 5th to learn more about Batten disease and advocacy.
Free Admission
Get Involved Today
Your support is crucial in our mission to find a cure for Batten disease. Consider making a donation, joining our events, or volunteering your time. Every action makes a difference.
Phone
Address
265 American Legion Highway, Westport, MA 02790
Join Us in the Fight Against Batten Disease
Your involvement can make a significant difference in the lives of those affected by Batten disease. By supporting our research efforts, you contribute to the hope of finding a cure. Stand with us and help change the future for countless families. Every action counts. Join us today!