Join Us in the Fight Against Batten Disease

Join the Fight Against Batten Disease

Get Involved in Our Mission

Your support can make a difference in the battle against Batten disease. Explore how you can contribute to groundbreaking research and help us move closer to a cure.

Learn More

Our Mission and Community Impact

Batten Disease Research is dedicated to advancing scientific understanding and finding a cure for Neuronal Ceroid Lipofuscinoses, commonly known as Batten disease. Our mission focuses on promoting the rights of those affected and raising essential funds for research. Community involvement is crucial, as it fuels our efforts to host impactful events and spread awareness. Together, we can drive change and hope for families worldwide.

$ Raised So Far

Support Our Cause with Your Donation

Your tax-deductible donation directly supports innovative research aimed at curing Batten disease. Contributions help fund critical studies and provide resources for affected families. Every donation, big or small, propels us closer to breakthroughs that could change lives.
Donate Now

Volunteering Opportunities

Community Outreach

Join our team in spreading awareness about Batten disease through local events and educational programs.

Event Coordination

Help organize and manage our fundraising events to ensure their success and maximize community engagement.

Research Support

Assist our research team by providing administrative support and helping with data collection efforts.

Upcoming Fundraising Events

Batten Disease Research Golf Tournament

Participate in our annual golf tournament to help raise funds for Batten disease research and enjoy a day of fun and camaraderie.

June 15, 2024

FREE

Learn More

Charity Run for a Cure

Join us for a charity run to support research efforts and raise awareness about Batten disease in our community.

September 10, 2024

FREE

Sign Up

Annual Gala Night

Attend our gala night for an evening of entertainment and fundraising to support our mission to find a cure.

November 22, 2024

FREE

Reserve Your Spot

Family Fun Day

Bring your family for a day of fun activities while supporting Batten disease research and awareness.

August 5, 2024

FREE

Join Us

Voices of Support

“Thanks to the efforts of Batten Disease Research, we feel hopeful for the future of our children.”

Emily R., Parent

“Volunteering with this organization has been a rewarding experience, knowing I’m contributing to a meaningful cause.”

Michael T., Volunteer

“The support from the community has been overwhelming and gives us strength to keep fighting.”

Sarah L., Family Member

Reach Out for More Information

Get Involved with Us

If you are interested in learning more about how you can support Batten Disease Research, please reach out to us. We are eager to provide you with detailed information on how you can make a difference. Contact us at:

Join the Fight Against Batten Disease

Get Involved Now