Join the Fight Against Batten Disease
Fundraising Events for a Cure
Participate in our annual events to support groundbreaking research and bring hope to families affected by Batten disease.
Sixteenth Annual Batten Disease Research Golf Tournament
Monday, July 28, 2025
Join us for a day of golf and camaraderie to raise funds for Batten disease research.
Sixteenth Annual Batten Disease Research Golf Tournament - Monday, July 28, 2025
Please join us for our Sixteenth Annual Batten Disease Research Golf Tournament. This tournament will raise money for a very rare and deadly disease, held on Monday, July 28, 2025. This year’s event is at Montaup Country Club. Act now and do not miss out on the opportunity to play this beautiful course as registrations are limited. The price of $175 per golfer includes green fees, cart rental, lunch, special golf skill contests and a gourmet dinner. Online registration is available at our website www.battendiseaseresearch.org.
During and after the dinner we will be raffling off many items. We will also distribute prizes and awards from the day’s events.
This very rare disease continues to need your support, as there is still no cure and ultimately ends in death. However, there are some great strides. A research company call Bio-Martin have found a drug that is slowing the progression of this disease. Rare diseases get minimal funding for research if any at all. This is why we continue to do as much as we can to raise money and awareness. Our efforts are working!
If you would like to help, there are many things you can do. Become a sponsor, sign up to be a golfer, donate raffle items, and make a donation. No contribution is too small. Any support you can offer is greatly appreciated as we continue to fight to put an end to this horrible disease.
Thank you,
Moe and Jean St. Gelais
Tournament Information
When: Monday, July 28, 2025– 11:30pm Registration & Lunch, 1:00pm Ceremony & Shot Gun Start
Where:
Montaup Country Club
500 Anthony Road
Portsmouth, RI 02781
Format: Scramble – Four player men’s, women’s and mixed teams
Golf Cost: $175 per person includes 18 holes of golf with cart, lunch and a gourmet buffet
Contests: Hole-in-one, Closest to the Pin, Longest Drive, 50/50 hole, Raffles
Special Offer: 2 FREE Mulligan’s When payment is received by June 20, 2025
Gold Sponsorship Package – $1600
4 Player Registrations with Dinner
4 Extra Dinner Only Tickets
4 Mulligan’s
Golf Shirts for the foursome
Cart Sign Recognition
Company Banner on Tee Box
Advertisement at Registration Table
Reserved table at dinner
25 Raffle Tickets (per golfer)
Silver Sponsorship Package – $1100
4 Player Registrations with Dinner
Reserved table at dinner
4 Mulligan’s
Golf Shirts for the foursome
Name Advertisement on Tee Sign
15 Raffle Tickets (per golfer)
Team Recognition Package – $850
4 Player Registrations with Dinner
4 Mulligan’s
10 Raffle Tickets (per golfer)
Team Recognition Package – $850
4 Player Registrations with Dinner
4 Mulligan’s
10 Raffle Tickets (per golfer)
Tee Signs – $100
Name Advertisement on Tee Sign
Individual Golfer – $175
18 holes of golf with cart, lunch and a gourmet buffet
Instructions to Register for the Tournament
1. Download and fill out the Registration Form.
2. Add the items you are purchasing for the Tournament to the Shopping cart using the links below.
Four Player Packages
Individual Player
Tee Sign
3. Go to the top of this page and click on the Cart icon in the Header. From there you can adjust items you wish to purchase and then proceed to checkout. If you have any trouble, please don’t hesitate to call us at (508) 993-5500.
Thanks for Partnering With Us in the Fight Against Batten Disease
Your support is crucial in advancing research and finding a cure for Batten disease. If you want to volunteer for our events or make a donation. click the button below.
Join Our Fight Against Batten Disease
Your support is crucial in our journey to find a cure for Batten disease. Whether through donations or participation in our fundraising events, every action makes a difference. Join us today and be a part of the solution.